Welcome to a movement to connect patients in our community to the support they need! Answer the following questions to see how you can help or benefit.

Do you have abnormal fat distribution?

While you do not qualify for one of our resources, you can help FPL patients in just a few clicks!

We identified groups that can help you:

We partner with local & national groups to support FPL patients. Click below to find the group for you and share to help patients in your community!

A Lipodystrophy United ambassador will email you with next steps!

Helping FPL patients in your community

Starts with YOU

Show me how

Be part of the solution.

Help us find FPL patients!


You share messages to help find patients. We connect them with the help they need.

Many people with Familial Partial Lipodystrophy do not know that they have it until later in life when it starts to severely affect their health. Fortunately, there are some obvious signs to look for.

Help patients in your community

Customize your image

Resources [back to network]

We connect people who meet the following criteria with opportunities:

What do you qualify for?

Check if there's an opportunity for you or somebody you know.

Lipodystrophy United (link)

Our mission is to provide an interactive community, facilitating support and education for anyone affected by lipodystrophy. We serve as a resource and to increase awareness in the general population as well as the medical and insurance communities.

Messages [top]

Share a template to help others:

Our Ambassadors [top]

Reach ambassador rank for opportunities to travel and meet patients and influencers:

to see your patient impact!